For some young people with autism and/or a learning disability it may be that there are times in their care when they need more support to make sure to their care is working as well at it can. If this is the case, people working with you (usually from education, CAMHS or social care) may suggest that your details are added to the Dynamic Support Register. 

It is a local register held by LBBD Children’s Social Care and North East London Integrated Care Board (NEL ICB) within Barking & Dagenham. This is part of the National Health Service (NHS).

This means that the child or young person’s needs will be discussed regularly with the people who need to support them, to think about what may need to be done to ensure their needs are met and hospital admission avoided. 

It may also mean that a Care, Education and Treatment Review (CETR) is organised. 

If a child/young person on the Dynamic Support Register, their care will be discussed by senior people working in relevant services. This may include:

• Clinical Psychologists and or Psychiatrists from CAMHS
• Autism and Learning Disability Managers within NEL ICB
• an Educational Psychologist
• Senior Education Health and Care Plan Coordinator or an officer from the Education Inclusion and Safeguarding Service.
• a Social Care Senior Manager from CYPD Services

All information is kept electronically on a separate file system that a limited number of staff in LBBD Children’s Social Care and the NEL ICB can access.

Information may include:

• name, date of birth, NHS number
• diagnosis of autism and/or learning disability
• brief summary of why enhanced support might be required
• the people working with you may also share some of your files (but not all) to help people understand the care you are currently receiving. Only files that are most relevant will be shared, such as:
  • diagnostic report
  • cognitive assessments, reports from speech and language therapy
  • care plan from CAMHS
  • EHCP plan
  • plan or care package from social care 

Details will be removed from the register and all files deleted 12 months after you have stopped being on the register.

You can ask for your details to be removed at any time by emailing dsr@lbbd.gov.uk

There are 2 ways to be added to the DSR.

Professional referral

Your Care Coordinator or other professionals involved in your care can request a young person be added to the register. They will need your consent before any information is added to the register.

Self–referral

Alternatively, if you feel your child or young person is at risk of a hospital admission you can also self-refer to be added to the Dynamic Support Register. Any self-referrals will be considered in monthly DSR meetings. Families will be informed whether their child or young person has been placed on the register.

If you live in the London Borough of Barking and Dagenham and you wish to be referred to the Dynamic Support Register, please contact email dsr@lbbd.gov.uk for further information.

Children and young people on the Dynamic Support Register will be RAG-rated. This is a bit like a traffic light system. It is based on the level of risk of admission and or the need for more support.

• green for young people who are having their risks/needs managed well at home.
• amber for young people who are at risk of going into hospital if they do not get the right care and treatment soon.
• red for young people who are at high risk of going into hospital straight away.
• blue for young people who are already in hospital.

When assessing the level of risk/need for each child or young person we consider:

• any significant life events
• mental/physical health
• admission history
• transition between children’s and adult’s services
• education provision including residential or specialist provision
• presenting challenging behaviours
• changes in support staff
• contact with the criminal justice system
• alcohol consumption/misuse
• recent crises involving accessing either A&E or emergency social care

The register is called dynamic (active or changing) because it reflects the changing needs of the person and their situation. This means the rag rating can change regularly, based on the changing needs of the child or young person.

If the risk is thought to be Amber or Red, then the family and professionals might discuss and agree if a Care Education Treatment Review (CETR) meeting would be helpful.

When on the dynamic support register, you may be offered support from the North East London Keyworking Service. The aim of the Keyworking Service is:

• to ensure children, young people and their family's voices are heard and represented and they have the right support from services at the right time
• to either avoid admission or reduce the length of stay in a specialist hospital and help improve the experiences and outcomes.

For more information, please visit the North East London Keyworking Service website or email keyworking@nelft.nhs.uk